Nystagmus Network

The Nystagmus Network is a registered charity in England and Wales supporting people living with nystagmus. Nystagmus is a complex eye condition, characterised by involuntary movements of the eye. The eyes appear to wobble or flicker from side to side, up and down or round and round. Nystagmus causes impaired vision, affecting the ability to focus, speed and depth perception and facial recognition. At least 1 in 1,000 people are born with nystagmus and many more acquire the condition later in life.

 The charity was founded in 1984 by Vivien Jones after her son was diagnosed with nystagmus when he was three months old. It has grown exponentially from very humble beginnings to the hi-tech digital online presence of today. The Nystagmus Network provides support and information, promotes a better understanding of nystagmus through an annual Nystagmus Awareness Day on 20 June and throughout the year and funds research to find effective treatments. Through its support services, the Nystagmus Network ensures that, following diagnosis, there is somewhere for a family to turn to.


Website: www.nystagmusnetwork.org 

Email: info@nystagmusnet.org 

Tel: 01427 718093

Address: 70 Hyde Vale London SE10 8HP

Social media

Linkedin: Linkedin.com/nystagmusnetwork 

Twitter: Twitter.com/NystagmusUK 

Facebook: Facebook.com/NystagmusNetwork 

Instagram: Instagram/NystagmusNetwork

Nystagmus Awareness Day - 20 June



Who to contact

Contact Name
Sue Ricketts
Contact Position
Executive Information and development manager
01427 718093 01427 718093
Website address
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Nystagmus Network
70 Hyde Vale,
SE10 8HP

We operate a virtual service and have no physical premises however we have website support and information service and telephone helpline available, 


Time / date details

Opening times/date
Office hours daily. 24/7 website support
Session Information
Monthly zoom meetings and telephone access 9/5 weekdays

Other Details

Cost Details
No charge for our services however membership is available but not a requirement for free support and information
Who is this service for?
We support all age groups free of charge. Self referral via telephone or email 24/7 support and advice on website 9-5 telephone support service
Referral Details

Self referral via telephone or email

Last Updated

Last updated:


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