PANS/PANDAS UK Charity
PANS (paediatric autoimmune neuropsychiatric syndrome) and PANDAS (paediatric autoimmune neuropsychiatric syndrome associated with strep) are devastating neuropsychiatric conditions that are currently poorly recognised, diagnosed and supported both medically and in schools.
One estimate suggests that up to 1 in 200 children suffer from this condition.
The PANS/PANDAS Charity helps to provide:
- Resources for parents including diagnostic criteria and details of local support groups.
- Resources for Medical professionals
- Resources for teachers and Schools
- Teacher training package
- Facebook group for parents/caregivers
- Facebook group for Young People age 12-17 with the condition.
- Facebook group for Adults
- Links to further Research
- Advocacy and support from the charity
Any Children aged 4 to 19 who are displaying symptoms associated with the condition and/or diagnosed with the conditions. Affected children can be in mainstream, alternative, specialist provision or electively home educated.
Who to contact
- Contact Name
- Vicky Burford
- Contact Position
- Secretary
- Telephone
- 07808764750 07808764750
- secretary@panspandasuk.org
- Website
- PANS/PANDAS UK
- Scan to visit this website
Location
- Notes
All of Islington covered. We provide support via our Facebook group PANS PANDAS UK.
Time / date details
- Time of day
-
Daytime
Evening - Session Information
-
Please join our Facebook group PANS PANDAS UK
where you can obtain further support as and when needed.
Other Details
- Cost Details
- Free at point of access, supported through the PANS/PANDAS UK Charity.
- Who is this service for?
- Parents/Carers and Facebook group for Young People age 12-17 with the condition.
- Can I refer myself?
- Referral not required
- Referral Details
Self-referral, Education provider (consent obtained), SEND Specialists and Educational Psychologists.
Self-referral, Education provider (consent obtained), SEND Specialists and Educational Psychologists.
- External Links
Last Updated
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